Living Life with Chronic Illness – Under Construction
After two weeks of exercise I started a sticker chart. I just called the start of the sticker chart week 1 since the stuff I did up until then didn't really count as a workout. Like a little kid, it makes me happy to put a sticker on my chart. My exercise goals are to... Continue Reading →
I went to the doctor yesterday to make sure I hadn't caught Emma's strep. Since my throat almost always hurts, I never know when I have strep. It has gone to my kidneys in the past because I didn't notice a difference. Luckily, I don't have it! I also talked to my doctor about my... Continue Reading →
Being sick all through college, I became a big "push through" type of person. I felt that anything someone wanted, they could get if they just did everything right (whatever that means). For me, this meant getting a ton of experience in my field so I wouldn't graduate college with only a degree to show... Continue Reading →
It is so nice to be home! The ride home made me very sick. By the time we got home, my heart was pounding so hard in my chest I couldn't ignore it and my lymph nodes were swollen. Still, it was so nice to arrive at home and sleep in my own... Continue Reading →
I'm alive! The picture above is from when I was waiting for my neurologist appointment Friday and my evidence of why I couldn't let everyone know how my day had gone. At this point, I had been up about 27 hours because Thursday night I didn't sleep a minute. For some reason, the Ambien I... Continue Reading →
Yay! I am done with all of my testing! I have to say all of the stuff all of you have written encouraging me really helped out. Today was the Tilt Table Test -- the test I have been dreading all week. Tilt Table Test POTS stands for Postural Orthostatic Tachycardia Syndrome, if you break this... Continue Reading →
Mayo Clinic Day 1 It is the end of my first day of testing. Although everyone I have encountered has been nice, professional, and helpful, I have to say -- I CANNOT WAIT FOR BED!! It has been exhausting having a test or another every hour! That said, it is all worthwhile because it should... Continue Reading →
