Living Life with Chronic Illness – Under Construction
If you read my last post, you'll see my infusion pump was set wrong and infused the IVIG twice as fast as my body is used to, which resulted in significant side effects. After 3 days of pain, I took steroids and felt quite a bit better. I took the steroids for 5 days. When... Continue Reading →
Today is Sunday, and I had my second IVIG infusion on Tuesday. As I mentioned in my last post, the plan was for me to take steroids the day of infusions and the day after in order to prevent headaches (which are a common side effect of IVIG). Since there is a risk of secondary... Continue Reading →
As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went... First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave... Continue Reading →
Thanks to Disney, it is well known that stepmoms spend a good chunk of their time formulating plots to ruin their stepdaughter's lives. I am no exception. One night this past winter, I could not sleep (which is to say, it was like every other night). As I lie there, trying to sleep, I began... Continue Reading →
I have spent most of my absence from blogging managing my medical issues, and taking panoramas of waiting and exam rooms.
Here are some pictures from our visit to the Shedd Aquarium a month and a half ago. Visiting Shedd has been a goal of ours since 2012. We finally realized there possibly may never be a "perfect" time to go in terms of my health; we needed to just go for it! I am proud... Continue Reading →
