IVIG #3 Update Page

  My infusion started around 2PM and it is 5PM. I've had severe headaches with my first two infusions, the headache with the last one being beyond what I could tolerate. We will keep tweaking things each infusion until we figure out which changes result in less severe of a headache. Changes this time: I... Continue Reading →

IVIG Infusion #1 Update Page

My first IVIG infusion (since a series of 3 in early 2015) starts in about 3 hours. I am not nervous because we have a solid plan in place to minimize side effects, and whatever is going to happen, will happen. However, many of my family members still worry about how the first infusion will... Continue Reading →

Insurance Finally Approved IVIG!

  Well friends and family - I am happy to say that after several attempts made by multiple doctors, and 200+ hours of efforts on my part (research, synthesizing information, phone calls, e-mails) over the past 2 years, my insurance company has finally been convinced IVIG is a medical necessity in my case!!! “After careful... Continue Reading →

Visit to the Aquarium

Here are some pictures from our visit to the Shedd Aquarium a month and a half ago. Visiting Shedd has been a goal of ours since 2012. We finally realized there possibly may never be a "perfect" time to go in terms of my health; we needed to just go for it! I am proud... Continue Reading →

Honeymooning While Chronically Ill

Thanks to lots of rest, I am finally starting to feel a little bit less rundown, have gotten back in touch with my doctors, and have had energy to work on writing this post about our honeymoon. I'll post wedding photos once those are in. We had 3 days between our wedding and honeymoon. I... Continue Reading →

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