To find out if it a patient has Hyperadrenergic POTS, specialized doctors typically order an endocrine test called a Catecholamine Blood Test. I had my test performed at Mayo Clinic's Autonomic Clinic in Rochester, Minnesota. Want proof? Here is a glamor shot taken just prior to the test: Okay, time to get serious! The Catecholamine... Continue Reading →
Mayo Clinic’s Autonomic Clinic — A Guide
This blog wouldn't exist if I hadn't gone to Mayo Clinic's Autonomic Clinic and been lucky enough to have a lot of people who wanted to stay up to date. While I covered what it is like to go through the clinic, there are some basic (and important) questions I have come to realize I... Continue Reading →
A Chat with Mayo Clinic Doctor
It has been 14 weeks since I left Mayo Clinic. This morning I called Mayo Clinic because it had been nearly a month since I called asking if Dr. Fealey had any additional input. His secretary seemed horrified I had waited so long and told me Dr. Fealey would personally call me. I was so... Continue Reading →
The Anti-Catastrophizer
I went to the doctor yesterday to make sure I hadn't caught Emma's strep. Since my throat almost always hurts, I never know when I have strep. It has gone to my kidneys in the past because I didn't notice a difference. Luckily, I don't have it! I also talked to my doctor about my... Continue Reading →
What’s new since I’ve been home…
It is so nice to be home! The ride home made me very sick. By the time we got home, my heart was pounding so hard in my chest I couldn't ignore it and my lymph nodes were swollen. Still, it was so nice to arrive at home and sleep in my own... Continue Reading →
Mayo Clinic Day 4
Hey everyone! I have some really exciting news -- I got to try on wedding dresses today!!!! It killed me and right now I feel the worst I have felt in about a month, but I must say, it was worth it. If you want to see the top 2 contenders right now and put... Continue Reading →
Mayo Clinic Day 2
Thank you everyone for reading my blog and the all of your kind thoughts! I am very encouraged by all of it and it definitely lifted my spirits! So today was rough. I am soooo so tired from yesterday that I have taken 2 naps... Luckily, I have awesome parents. My mom has been cooking... Continue Reading →
Mayo Clinic Day 1
Mayo Clinic Day 1 It is the end of my first day of testing. Although everyone I have encountered has been nice, professional, and helpful, I have to say -- I CANNOT WAIT FOR BED!! It has been exhausting having a test or another every hour! That said, it is all worthwhile because it should... Continue Reading →