As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went… First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave…… Continue reading September 2016: Weddings and -ologists Galore!
I just got home from my appointment, which went well. It was a long day; we left at noon and got home at eight-thirty. I am not thinking about what a long day it was. What I am thinking about is my husband, Jake. I am feeling very appreciative to him for driving me to…… Continue reading In Sickness and in Health – When Sickness Comes First
Hello. I wanted to drop in. Most of the energy I have this week is going towards existing and prepping for an appointment, which is in 2 days. For the past year, I have not consistently fit in learning and researching on a weekly basis, which is how I used to do it. This means…… Continue reading Cramming for an Appointment/Went to a Wedding
I don’t know what my husband wished for as he blew out his candles on his fourth birthday. As for me? Perhaps four-year-old Jackie was wishing she would someday marry a man who would be straight with her about tough topics, such as hospital breath. Jake: “Your breath smells like Gatorade and hospital.” Me: “Well,…… Continue reading Hospital Breath
“I didn’t know you were planning on going to the grocery store. You are so exhausted. Yesterday, you were talking about how run down you are. Why are you wanting to use your energy on the grocery store? Just let me do the shopping. If there’s something you really want to pick yourself, let’s go…… Continue reading Stubbornness Ninja
Thanks to lots of rest, I am finally starting to feel a little bit less rundown, have gotten back in touch with my doctors, and have had energy to work on writing this post about our honeymoon. I’ll post wedding photos once those are in. We had 3 days between our wedding and honeymoon. I…… Continue reading Honeymooning While Chronically Ill
I am very worn out today from celebrating a family member’s birthday yesterday (yay me!) and also from the steroids, I think. Sent to my fiancé from bedroom: Fiancé comes charging in playfully, but serious: “Jaclyn, listen! Do not apologize to me for being sick. I don’t want to hear it again!” perfect response