Since the more common remedies for IVIG headaches did not work for me, a friend suggested I ask about trying a diuretic called Diamox. My doctor was down with the idea, so I tried it out with IVIG infusion #13. My IVIG Headache History RecapI experience no headache whatsoever during the infusion. The headaches usually do... Continue Reading →
IVIG #11 & #12 Update Pages
Since we now know what to expect with IVIG infusions, I have decided to switch from doing real time infusion updates to doing updates after I recover from my infusions. I continue to get 30 grams of IVIG (which works out to about 1.2 g/kg) every 2 weeks at a rate of 50 mL/hour... Continue Reading →
IVIG #10 Update Page
IVIG #10 was actually a week ago. Hopefully after you hear about how busy I have been, you will forgive me for not posting the IVIG #10 update page on time. For starters, we are in the middle of buying a house which is exciting but also requires a good amount of energy. Secondly, my... Continue Reading →
IVIG #9 Update Page
So, I cheated a little bit and didn't post this update page on the day of my infusion, which was 3 days ago. I forgot to set it up the day before the infusion, and the Benadryl makes me fairly unmotivated on actual infusion days. The good news is the lack of motivation lead to... Continue Reading →
My Latest Label: Sjogren’s Syndrome
I am incredibly tired. I drug myself to the dentist half an hour away only to find out I was a day early! It was no one's fault but my own, however it is still frustrating to have used energy I don't have on getting there. No way could I do it all over again... Continue Reading →