My infusion started around 2PM and it is 5PM. I’ve had severe headaches with my first two infusions, the headache with the last one being beyond what I could tolerate. We will keep tweaking things each infusion until we figure out which changes result in less severe of a headache. Changes this time: I…… Continue reading IVIG #3 Update Page
Today is Sunday, and I had my second IVIG infusion on Tuesday. As I mentioned in my last post, the plan was for me to take steroids the day of infusions and the day after in order to prevent headaches (which are a common side effect of IVIG). Since there is a risk of secondary…… Continue reading IVIG #2 Update Page
Some people have been asking about how I am doing (thank you!), so I thought I would post an update. Today is Monday and the infusion was Wednesday. I developed a bad headache on Thursday. I wasn’t concerned about it being aseptic meningitis since there was no vomiting, light sensitivity (photophobia), or sound sensitivity (misophonia).…… Continue reading The Week After IVIG #1
“Daddy said I should ask you about new medicine you are getting.”
Mindful of her hopes, I respond in as neutral of a tone as I can manage…
As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went… First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave…… Continue reading September 2016: Weddings and -ologists Galore!
Thanks to Disney, it is well known that stepmoms spend a good chunk of their time formulating plots to ruin their stepdaughter’s lives. I am no exception. One night this past winter, I could not sleep (which is to say, it was like every other night). As I lie there, trying to sleep, I began…… Continue reading Am I an Evil Stepmom?
I just got home from my appointment, which went well. It was a long day; we left at noon and got home at eight-thirty. I am not thinking about what a long day it was. What I am thinking about is my husband, Jake. I am feeling very appreciative to him for driving me to…… Continue reading In Sickness and in Health – When Sickness Comes First