My infusion started around 2PM and it is 5PM. I’ve had severe headaches with my first two infusions, the headache with the last one being beyond what I could tolerate. We will keep tweaking things each infusion until we figure out which changes result in less severe of a headache. Changes this time: I…… Continue reading IVIG #3 Update Page
Today is Sunday, and I had my second IVIG infusion on Tuesday. As I mentioned in my last post, the plan was for me to take steroids the day of infusions and the day after in order to prevent headaches (which are a common side effect of IVIG). Since there is a risk of secondary…… Continue reading IVIG #2 Update Page
My first IVIG infusion (since a series of 3 in early 2015) starts in about 3 hours. I am not nervous because we have a solid plan in place to minimize side effects, and whatever is going to happen, will happen. However, many of my family members still worry about how the first infusion will…… Continue reading IVIG Infusion #1 Update Page
“Daddy said I should ask you about new medicine you are getting.”
Mindful of her hopes, I respond in as neutral of a tone as I can manage…
As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went… First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave…… Continue reading September 2016: Weddings and -ologists Galore!
I spent the past few days alternating between resting, stretching, and cleaning. That may sound boring, however I am pretty excited about it. My house has gone a long time without a deep clean, and various obligations have meant I couldn’t use my energy toward whipping it back into shape. All summer, I have looked…… Continue reading Cleaning While Chronically Ill – It’s Slow
Thanks to Disney, it is well known that stepmoms spend a good chunk of their time formulating plots to ruin their stepdaughter’s lives. I am no exception. One night this past winter, I could not sleep (which is to say, it was like every other night). As I lie there, trying to sleep, I began…… Continue reading Am I an Evil Stepmom?