My infusion started around 2PM and it is 5PM. I've had severe headaches with my first two infusions, the headache with the last one being beyond what I could tolerate. We will keep tweaking things each infusion until we figure out which changes result in less severe of a headache. Changes this time: I... Continue Reading →
Today is Sunday, and I had my second IVIG infusion on Tuesday. As I mentioned in my last post, the plan was for me to take steroids the day of infusions and the day after in order to prevent headaches (which are a common side effect of IVIG). Since there is a risk of secondary... Continue Reading →
As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went... First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave... Continue Reading →
I have spent most of my absence from blogging managing my medical issues, and taking panoramas of waiting and exam rooms.
Thanks to lots of rest, I am finally starting to feel a little bit less rundown, have gotten back in touch with my doctors, and have had energy to work on writing this post about our honeymoon. I'll post wedding photos once those are in. We had 3 days between our wedding and honeymoon. I... Continue Reading →
For the first post on IVIG side effects, click here. I was doing better so I stopped the strong meds because I don't enjoy the drugged feeling. All was fine, aside from needing Reglan to force the small amount of food I was eating to exit my stomach. Sunday I played Jackie friendly games with... Continue Reading →
I am incredibly tired. I drug myself to the dentist half an hour away only to find out I was a day early! It was no one's fault but my own, however it is still frustrating to have used energy I don't have on getting there. No way could I do it all over again... Continue Reading →
I have an appointment with my Immunologist tomorrow. I am sharing the report I put together for her on my experience with Medrol (methylprednisolone). Here is the post I wrote on day 2 of steroids which explains the "why" of this experiment and another post written as I began to feel less side effects from... Continue Reading →