IVIG #3 Update Page

  My infusion started around 2PM and it is 5PM. I've had severe headaches with my first two infusions, the headache with the last one being beyond what I could tolerate. We will keep tweaking things each infusion until we figure out which changes result in less severe of a headache. Changes this time: I... Continue Reading →

IVIG #2 Update Page

Today is Sunday, and I had my second IVIG infusion on Tuesday. As I mentioned in my last post, the plan was for me to take steroids the day of infusions and the day after in order to prevent headaches (which are a common side effect of IVIG). Since there is a risk of secondary... Continue Reading →

Honeymooning While Chronically Ill

Thanks to lots of rest, I am finally starting to feel a little bit less rundown, have gotten back in touch with my doctors, and have had energy to work on writing this post about our honeymoon. I'll post wedding photos once those are in. We had 3 days between our wedding and honeymoon. I... Continue Reading →

IVIG Side Effects: Day 6

For the first post on IVIG side effects, click here. I was doing better so I stopped the strong meds because I don't enjoy the drugged feeling. All was fine, aside from needing Reglan to force the small amount of food I was eating to exit my stomach. Sunday I played Jackie friendly games with... Continue Reading →

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