If you read my last post, you’ll see my infusion pump was set wrong and infused the IVIG twice as fast as my body is used to, which resulted in significant side effects. After 3 days of pain, I took steroids and felt quite a bit better. I took the steroids for 5 days. When…… Continue reading IVIG #8 Update Page
I am receiving my seventh IVIG treatment today. I am feeling pretty exhausted, not so much from the treatment (I don’t think) and more so from having been busier lately. We are house hunting which is exciting. POTS life tip – scheduling to walk through 4 houses in one day is a POTS disaster. :)…… Continue reading IVIG #7 Update Page
My sixth infusion starts in about twenty minutes. Hopefully the Benadryl doesn’t knock me out and I can write an overall update here. 🙂 Psych! The infusion company was supposed to overnight the saline they forgot to send along with my IVIG. The nurse arrived and it still wasn’t here, so I called for tracking…… Continue reading IVIG #6 Update Page
I am late with this post! That will teach me not to get the post set up the night before my infusion. 🙂 Fortunately, I keep notes so I can give you an idea how things went. I had my fifth infusion on Wednesday 4/5/17. I took Benadryl, NAC, Tylenol, and we infused a liter…… Continue reading IVIG #5 Update Page
My infusion started around 2PM and it is 5PM. I’ve had severe headaches with my first two infusions, the headache with the last one being beyond what I could tolerate. We will keep tweaking things each infusion until we figure out which changes result in less severe of a headache. Changes this time: I…… Continue reading IVIG #3 Update Page
Today is Sunday, and I had my second IVIG infusion on Tuesday. As I mentioned in my last post, the plan was for me to take steroids the day of infusions and the day after in order to prevent headaches (which are a common side effect of IVIG). Since there is a risk of secondary…… Continue reading IVIG #2 Update Page
As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went… First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave…… Continue reading September 2016: Weddings and -ologists Galore!