As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went... First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave... Continue Reading →
Cleaning While Chronically Ill – It’s Slow
I spent the past few days alternating between resting, stretching, and cleaning. That may sound boring, however I am pretty excited about it. My house has gone a long time without a deep clean, and various obligations have meant I couldn't use my energy toward whipping it back into shape. All summer, I have looked... Continue Reading →
Lack of Posts Brought to You by Poor Health and Insurance Companies
I have spent most of my absence from blogging managing my medical issues, and taking panoramas of waiting and exam rooms.
Six Year Old Identifies Cure
A six year old's ideas on possible treatments....
Orbitotomy Update/Stitches Out Tomorrow
I'm doing slightly better than last time we talked. In terms of my eye, I'm doing very well! I've never had a cut or surgery heal this well. It seems to still hurt some where the actual biopsy was performed (the gland) but the incision feels fine. Everyone keeps asking if my stitches are itchy... Continue Reading →
A Chat with Mayo Clinic Doctor
It has been 14 weeks since I left Mayo Clinic. This morning I called Mayo Clinic because it had been nearly a month since I called asking if Dr. Fealey had any additional input. His secretary seemed horrified I had waited so long and told me Dr. Fealey would personally call me. I was so... Continue Reading →
The Anti-Catastrophizer
I went to the doctor yesterday to make sure I hadn't caught Emma's strep. Since my throat almost always hurts, I never know when I have strep. It has gone to my kidneys in the past because I didn't notice a difference. Luckily, I don't have it! I also talked to my doctor about my... Continue Reading →
My “Push Through” Mentality
Being sick all through college, I became a big "push through" type of person. I felt that anything someone wanted, they could get if they just did everything right (whatever that means). For me, this meant getting a ton of experience in my field so I wouldn't graduate college with only a degree to show... Continue Reading →
What’s new since I’ve been home…
It is so nice to be home! The ride home made me very sick. By the time we got home, my heart was pounding so hard in my chest I couldn't ignore it and my lymph nodes were swollen. Still, it was so nice to arrive at home and sleep in my own... Continue Reading →
Mayo Clinic — Consultation & Radioactivity!
I'm alive! The picture above is from when I was waiting for my neurologist appointment Friday and my evidence of why I couldn't let everyone know how my day had gone. At this point, I had been up about 27 hours because Thursday night I didn't sleep a minute. For some reason, the Ambien I... Continue Reading →