When people say I look pretty…

I haven't posted in forever! That's because I've had things to do each week and weekend. Typically, my social life is one family event a month, one or two medical visits, and the rest of my energy goes to existing, hanging out at home with Jake, and playing with Emma when she comes. Up until... Continue Reading →

A Chat with Mayo Clinic Doctor

It has been 14 weeks since I left Mayo Clinic. This morning I called Mayo Clinic because it had been nearly a month since I called asking if Dr. Fealey had any additional input. His secretary seemed horrified I had waited so long and told me Dr. Fealey would personally call me. I was so... Continue Reading →

Mayo Clinic Day 4

Hey everyone! I have some really exciting news -- I got to try  on wedding dresses today!!!! It killed me and right now I feel the worst I have felt in about a month, but I must say, it was worth it. If you want to see the top 2 contenders right now and put... Continue Reading →

Mayo Clinic Day 3

Yay! I am done with all of my testing! I have to say all of the stuff all of you have written encouraging me really helped out. Today was the Tilt Table Test -- the test I have been dreading all week. Tilt Table Test POTS stands for Postural Orthostatic Tachycardia Syndrome, if you break this... Continue Reading →

Mayo Clinic Day 2

Thank you everyone for reading my blog and the all of your kind thoughts! I am very encouraged by all of it and it definitely lifted my spirits! So today was rough. I am soooo so tired from yesterday that I have taken 2 naps... Luckily, I have awesome parents. My mom has been cooking... Continue Reading →

Mayo Clinic Day 1

Mayo Clinic Day 1 It is the end of my first day of testing. Although everyone I have encountered has been nice, professional, and helpful, I have to say -- I CANNOT WAIT FOR BED!! It has been exhausting having a test or another every hour! That said, it is all worthwhile because it should... Continue Reading →

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