I just got home from my appointment, which went well. It was a long day; we left at noon and got home at eight-thirty. I am not thinking about what a long day it was. What I am thinking about is my husband, Jake. I am feeling very appreciative to him for driving me to... Continue Reading →
Like many POTS patients, I have low blood volume, and must consume large amounts of fluid in order to increase it. In order to "hold on" to all the fluid I drink, I must also consume large amounts of sodium. Nurses tend to do a double take of my chart when they see a few... Continue Reading →
I have spent most of my absence from blogging managing my medical issues, and taking panoramas of waiting and exam rooms.
"When life gives you a surplus of IV poles, make a coat stand." I can only take credit for the quote; the idea itself was my husband's. What an immensely inspirational quote though, right? It may even be worthy of juxtaposition over an image of a little girl running in a field of wild flowers,... Continue Reading →
Here are some pictures from our visit to the Shedd Aquarium a month and a half ago. Visiting Shedd has been a goal of ours since 2012. We finally realized there possibly may never be a "perfect" time to go in terms of my health; we needed to just go for it! I am proud... Continue Reading →
Thanks to lots of rest, I am finally starting to feel a little bit less rundown, have gotten back in touch with my doctors, and have had energy to work on writing this post about our honeymoon. I'll post wedding photos once those are in. We had 3 days between our wedding and honeymoon. I... Continue Reading →
You may be wondering where the IVIG #4 update is. Well, there won't be one. I know; I'm shocked too. Please read my remarks with sarcasm, not bitterness. The reason is one of the following two: My IVIG infusions were never approved by my insurance in the first place. The pharmacy misunderstood a lack of... Continue Reading →