I have spent most of my absence from blogging managing my medical issues, and taking panoramas of waiting and exam rooms.
"When life gives you a surplus of IV poles, make a coat stand." I can only take credit for the quote; the idea itself was my husband's. What an immensely inspirational quote though, right? It may even be worthy of juxtaposition over an image of a little girl running in a field of wild flowers,... Continue Reading →
Here are some pictures from our visit to the Shedd Aquarium a month and a half ago. Visiting Shedd has been a goal of ours since 2012. We finally realized there possibly may never be a "perfect" time to go in terms of my health; we needed to just go for it! I am proud... Continue Reading →
Thanks to lots of rest, I am finally starting to feel a little bit less rundown, have gotten back in touch with my doctors, and have had energy to work on writing this post about our honeymoon. I'll post wedding photos once those are in. We had 3 days between our wedding and honeymoon. I... Continue Reading →
You may be wondering where the IVIG #4 update is. Well, there won't be one. I know; I'm shocked too. Please read my remarks with sarcasm, not bitterness. The reason is one of the following two: My IVIG infusions were never approved by my insurance in the first place. The pharmacy misunderstood a lack of... Continue Reading →
In another post I'm writing (hope to post today), I intended to go on a slight tangent and say a few words explaining what a low FODMAPs diet is. It turned into a giant tangent and enough text to be its own post, so here it is. I have a lot to say about a... Continue Reading →
For the first post on IVIG side effects, click here. I was doing better so I stopped the strong meds because I don't enjoy the drugged feeling. All was fine, aside from needing Reglan to force the small amount of food I was eating to exit my stomach. Sunday I played Jackie friendly games with... Continue Reading →
I'm still sick, but I'm doing much better. Jake, my parents, and my sister are taking great care of me. I feel so grateful to my family. I feel so grateful Jake saw how sick I was and called all of the right people in terms of nurses, doctors, and family, then made the decision... Continue Reading →