Patiently Proactive

Patience: the capacity to accept or tolerate delay, trouble, or suffering without getting angry or upset Proactive: creating or controlling a situation by causing something to happen rather than responding to it after it has happened I am a proactive person and always have been. I don't wait around for the world to magically make... Continue Reading →

How To Be A Best Friend To A POTSie

I count myself lucky because, although I am extremely sick and can hardly ever socialize, I have held on to a few friends not related to me or long time family friends. I know that sounds sad, but really, considering my limitations, it is amazing. My best friend since I was about 16, Molly, has... Continue Reading →

Breakfast of Champions

What are you looking at? You are looking at my daily breakfast (or pre-breakfast I suppose although I cannot eat for an hour or two after drinking all of this). I drink all of this first thing in the morning on my good days. On the bad days, I add 12 ounces of tomato juice... Continue Reading →

Blood Pooling — Fight It!

Most people with POTS suffer from venous pooling, AKA blood pooling in their legs. It is painful! Imagine yourself jamming items into a bag. The bag stretches and stretches, and it gets heavier and heavier. In the case of venous pooling it is a similar situation. More blood is pooling in my legs than they... Continue Reading →

Annoyingly Optimistic

I've been affectionately called "annoyingly optimistic" by others. Throughout my life, my optimism and positive outlook have squashed almost any negative thoughts I've had and replaced them with a more positive perspective. I can thank my parents for my positive outlook and optimism. An optimistic outlook makes you more likely to try things because you aren't... Continue Reading →

A Chat with Mayo Clinic Doctor

It has been 14 weeks since I left Mayo Clinic. This morning I called Mayo Clinic because it had been nearly a month since I called asking if Dr. Fealey had any additional input. His secretary seemed horrified I had waited so long and told me Dr. Fealey would personally call me. I was so... Continue Reading →

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