As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went… First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave…… Continue reading September 2016: Weddings and -ologists Galore!
I spent the past few days alternating between resting, stretching, and cleaning. That may sound boring, however I am pretty excited about it. My house has gone a long time without a deep clean, and various obligations have meant I couldn’t use my energy toward whipping it back into shape. All summer, I have looked…… Continue reading Cleaning While Chronically Ill – It’s Slow
I just got home from my appointment, which went well. It was a long day; we left at noon and got home at eight-thirty. I am not thinking about what a long day it was. What I am thinking about is my husband, Jake. I am feeling very appreciative to him for driving me to…… Continue reading In Sickness and in Health – When Sickness Comes First
Here are some pictures from our visit to the Shedd Aquarium a month and a half ago. Visiting Shedd has been a goal of ours since 2012. We finally realized there possibly may never be a “perfect” time to go in terms of my health; we needed to just go for it! I am proud…… Continue reading Visit to the Aquarium
Even on what is considered a great health day for me, or even when I am doing something I enjoy, nothing is simple. That’s just how it is. The intensity of symptoms is usually proportionate to how much I have recently asked of my body, but I rarely get a break from symptoms being disabling…… Continue reading The Personification of My Chronically Ill Body
Today marks one week since I had my first intravenous immune globulin (IVIG) treatment. During the treatment itself, I did wonderful. During the days following treatment, not so much. The only thing uncomfortable on me today is the medicine head and my body feeling as though it weighs as much as an elephant. My daily…… Continue reading Last Day as a Phenergan Zombie
I am over my pesky cold and I got a good night of sleep which made today my best health day in 8 days. Enjoying my fiance’s day off with him after a week of being mostly bedridden meant so much to me. What did we do? Well, we hung out while I drank my…… Continue reading Happy Day