As predicted at the end of my last post, I did not post at all last month because it was busy. Here is how my month went… First up was the wedding weekend. On a Friday, we traveled from Illinois up to Iowa to attend a wedding on Saturday. We thought my body would behave…… Continue reading September 2016: Weddings and -ologists Galore!
I spent the past few days alternating between resting, stretching, and cleaning. That may sound boring, however I am pretty excited about it. My house has gone a long time without a deep clean, and various obligations have meant I couldn’t use my energy toward whipping it back into shape. All summer, I have looked…… Continue reading Cleaning While Chronically Ill – It’s Slow
I just got home from my appointment, which went well. It was a long day; we left at noon and got home at eight-thirty. I am not thinking about what a long day it was. What I am thinking about is my husband, Jake. I am feeling very appreciative to him for driving me to…… Continue reading In Sickness and in Health – When Sickness Comes First
Here are some pictures from our visit to the Shedd Aquarium a month and a half ago. Visiting Shedd has been a goal of ours since 2012. We finally realized there possibly may never be a “perfect” time to go in terms of my health; we needed to just go for it! I am proud…… Continue reading Visit to the Aquarium
I have an appointment with my Immunologist tomorrow. I am sharing the report I put together for her on my experience with Medrol (methylprednisolone). Here is the post I wrote on day 2 of steroids which explains the “why” of this experiment and another post written as I began to feel less side effects from…… Continue reading The Steroid Experiment: Thoughts, Pros, Cons
Did you know I am an avid reader? I’ve been escaping into dystopian and sci-fi type novels, but suddenly I was in the mood for a book with a chronically ill protagonist. I’ve been in a bit of a funk and I thought a narrator who voices my thoughts, who lives life the way I…… Continue reading “The Moonlight Sonata at the Mayo Clinic”
Going to a country where I am unable to speak the native language was a bit concerning for me as someone with a rare medical condition. I knew I needed to make sure I would be able to somehow communicate information about my medical condition to health professionals if the situation were to arise. Learning…… Continue reading POTS Alert Cards in English and Spanish