Living Life with Chronic Illness – Under Construction
If you've been reading my blog, you know I have been to both Mayo Clinic (Minnesota) and The POTS Treatment Center for help managing POTS. Most of my posts touch on all of the positives of each place. While I mentioned my personal struggles with getting through each program, I didn't really mention what I... Continue Reading →
To find out if it a patient has Hyperadrenergic POTS, specialized doctors typically order an endocrine test called a Catecholamine Blood Test. I had my test performed at Mayo Clinic's Autonomic Clinic in Rochester, Minnesota. Want proof? Here is a glamor shot taken just prior to the test: Okay, time to get serious! The Catecholamine... Continue Reading →
This blog wouldn't exist if I hadn't gone to Mayo Clinic's Autonomic Clinic and been lucky enough to have a lot of people who wanted to stay up to date. While I covered what it is like to go through the clinic, there are some basic (and important) questions I have come to realize I... Continue Reading →
It has been 14 weeks since I left Mayo Clinic. This morning I called Mayo Clinic because it had been nearly a month since I called asking if Dr. Fealey had any additional input. His secretary seemed horrified I had waited so long and told me Dr. Fealey would personally call me. I was so... Continue Reading →
After two weeks of exercise I started a sticker chart. I just called the start of the sticker chart week 1 since the stuff I did up until then didn't really count as a workout. Like a little kid, it makes me happy to put a sticker on my chart. My exercise goals are to... Continue Reading →
I went to the doctor yesterday to make sure I hadn't caught Emma's strep. Since my throat almost always hurts, I never know when I have strep. It has gone to my kidneys in the past because I didn't notice a difference. Luckily, I don't have it! I also talked to my doctor about my... Continue Reading →
It is so nice to be home! The ride home made me very sick. By the time we got home, my heart was pounding so hard in my chest I couldn't ignore it and my lymph nodes were swollen. Still, it was so nice to arrive at home and sleep in my own... Continue Reading →
I'm alive! The picture above is from when I was waiting for my neurologist appointment Friday and my evidence of why I couldn't let everyone know how my day had gone. At this point, I had been up about 27 hours because Thursday night I didn't sleep a minute. For some reason, the Ambien I... Continue Reading →
Hey everyone! I have some really exciting news -- I got to try on wedding dresses today!!!! It killed me and right now I feel the worst I have felt in about a month, but I must say, it was worth it. If you want to see the top 2 contenders right now and put... Continue Reading →
Yay! I am done with all of my testing! I have to say all of the stuff all of you have written encouraging me really helped out. Today was the Tilt Table Test -- the test I have been dreading all week. Tilt Table Test POTS stands for Postural Orthostatic Tachycardia Syndrome, if you break this... Continue Reading →
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