Did you know I am an avid reader? I’ve been escaping into dystopian and sci-fi type novels, but suddenly I was in the mood for a book with a chronically ill protagonist. I’ve been in a bit of a funk and I thought a narrator who voices my thoughts, who lives life the way I…… Continue reading “The Moonlight Sonata at the Mayo Clinic”
Going to a country where I am unable to speak the native language was a bit concerning for me as someone with a rare medical condition. I knew I needed to make sure I would be able to somehow communicate information about my medical condition to health professionals if the situation were to arise. Learning…… Continue reading POTS Alert Cards in English and Spanish
I haven’t posted in forever! That’s because I’ve had things to do each week and weekend. Typically, my social life is one family event a month, one or two medical visits, and the rest of my energy goes to existing, hanging out at home with Jake, and playing with Emma when she comes. Up until…… Continue reading When people say I look pretty…
While the Infectious Disease doctor didn’t have any “ah-ha” moments and definitely hadn’t looked over my files ahead of time (her staff’s fault for scheduling me as a patient with an acute need, not her fault), she did order a test I haven’t had before called a Gallium Scan. Here is how things proceeded… Tuesday…… Continue reading Why are some chronically ill patients so intense?
If you’ve been reading my blog, you know I have been to both Mayo Clinic (Minnesota) and The POTS Treatment Center for help managing POTS. Most of my posts touch on all of the positives of each place. While I mentioned my personal struggles with getting through each program, I didn’t really mention what I…… Continue reading It’s Not All Sunshine and Butterflies: The Negatives of Mayo Clinic and The POTS Treatment Center
Patience: the capacity to accept or tolerate delay, trouble, or suffering without getting angry or upset Proactive: creating or controlling a situation by causing something to happen rather than responding to it after it has happened I am a proactive person and always have been. I don’t wait around for the world to magically make…… Continue reading Patiently Proactive
To find out if it a patient has Hyperadrenergic POTS, specialized doctors typically order an endocrine test called a Catecholamine Blood Test. I had my test performed at Mayo Clinic’s Autonomic Clinic in Rochester, Minnesota. Want proof? Here is a glamor shot taken just prior to the test: Okay, time to get serious! The Catecholamine…… Continue reading “How would a doctor determine if I have Hyperadrenergic POTS?”: All About Catecholamine Testing in POTS