Health Update · Learn Something! · Tips & Tricks for Illness Management

Why are some chronically ill patients so intense?

While the Infectious Disease doctor didn’t have any “ah-ha” moments and definitely hadn’t looked over my files ahead of time (her staff’s fault for scheduling me as a patient with an acute need, not her fault), she did order a test I haven’t had before called a Gallium Scan. Here is how things proceeded… Tuesday…… Continue reading Why are some chronically ill patients so intense?

Health Update · Learn Something! · Mayo Clinic POTS Clinic experience · The POTS Treatment Center · Tips & Tricks for Illness Management

It’s Not All Sunshine and Butterflies: The Negatives of Mayo Clinic and The POTS Treatment Center

If you’ve been reading my blog, you know I have been to both Mayo Clinic (Minnesota) and The POTS Treatment Center for help managing POTS. Most of my posts touch on all of the positives of each place. While I mentioned my personal struggles with getting through each program, I didn’t really mention what I…… Continue reading It’s Not All Sunshine and Butterflies: The Negatives of Mayo Clinic and The POTS Treatment Center

Learn Something! · Other · Tips & Tricks for Illness Management

Patiently Proactive

Patience: the capacity to accept or tolerate delay, trouble, or suffering without getting angry or upset Proactive: creating or controlling a situation by causing something to happen rather than responding to it after it has happened I am a proactive person and always have been. I don’t wait around for the world to magically make…… Continue reading Patiently Proactive

Learn Something! · Mayo Clinic POTS Clinic experience · Other · Tips & Tricks for Illness Management

“How would a doctor determine if I have Hyperadrenergic POTS?”: All About Catecholamine Testing in POTS

To find out if it a patient has Hyperadrenergic POTS, specialized doctors typically order an endocrine test called a Catecholamine Blood Test. I had my test performed at Mayo Clinic’s Autonomic Clinic in Rochester, Minnesota. Want proof? Here is a glamor shot taken just prior to the test: Okay, time to get serious! The Catecholamine…… Continue reading “How would a doctor determine if I have Hyperadrenergic POTS?”: All About Catecholamine Testing in POTS

Learn Something! · Mayo Clinic POTS Clinic experience · Tips & Tricks for Illness Management

Mayo Clinic’s Autonomic Clinic — A Guide

This blog wouldn’t exist if I hadn’t gone to Mayo Clinic’s Autonomic Clinic and been lucky enough to have a lot of people who wanted to stay up to date. While I covered what it is like to go through the clinic, there are some basic (and important) questions I have come to realize I…… Continue reading Mayo Clinic’s Autonomic Clinic — A Guide