When people say I look pretty…

I haven't posted in forever! That's because I've had things to do each week and weekend. Typically, my social life is one family event a month, one or two medical visits, and the rest of my energy goes to existing, hanging out at home with Jake, and playing with Emma when she comes. Up until... Continue Reading →

Patiently Proactive

Patience: the capacity to accept or tolerate delay, trouble, or suffering without getting angry or upset Proactive: creating or controlling a situation by causing something to happen rather than responding to it after it has happened I am a proactive person and always have been. I don't wait around for the world to magically make... Continue Reading →

Eating “Normally”

Yesterday for my birthday (thanks for all the birthday wishes!) I cheated on my food intolerance diet and treated myself to Chinese. I took these pictures to document the effects because I know some people think I'd feel better if I just ate "normally". I'm positive any food that makes my stomach go from flat... Continue Reading →

Breakfast of Champions

What are you looking at? You are looking at my daily breakfast (or pre-breakfast I suppose although I cannot eat for an hour or two after drinking all of this). I drink all of this first thing in the morning on my good days. On the bad days, I add 12 ounces of tomato juice... Continue Reading →

Blood Pooling — Fight It!

Most people with POTS suffer from venous pooling, AKA blood pooling in their legs. It is painful! Imagine yourself jamming items into a bag. The bag stretches and stretches, and it gets heavier and heavier. In the case of venous pooling it is a similar situation. More blood is pooling in my legs than they... Continue Reading →

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