Intravenous Immune Globulin treatment (IVIG) is on for Wednesday. The nurse is getting here around 10, setting up, and then we will start. I am going to be updating hourly on my Twitter for anyone who is concerned about how my body will respond or interested in how my first day goes. You don’t need to have a Twitter account to view my page. I don’t anticipate any problems, but I thought it would be a nice way for people to know for sure without over-posting on my Facebook page or here. I’m just realizing now, “What if I fall asleep, they’ll all thing something horrible happened!!” Hmm… Will think of solution. Live camera feed? (kidding!!)
Here is how excited I am about getting to try IVIG:
Today, in addition to being excited, I’m REALLY worn out. Lymph nodes, sore throat, fever, dizzy, stomach working on and of, the whole nine yards! I definitely did too much tidying yesterday and the day before. It was worth it because I am sick in a clean house rather than a messy one. Also, I got to “nervous clean” (clean to distract myself from my thoughts) which my body almost always prevents me from doing. Also, my house was somewhat orderly still from the holidays, so I got to clean stuff I usually can’t due to it being low on the priority list. I’ve lived in this house 2 years and this is the first time my room has been clean. Anywho… I rested all day today and will do the same tomorrow.
Good luck Jackie! I will following your updates. I’m anxious with you lol…
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Good luck Jackie. Hope all goes well. I nervous clean as well 😊
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I always prefer to be ill in a tidy house. I know it doesn’t make sense but somehow it’s worthwhile if I can do it! Hope it works for you, good luck 🙂
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pLEASE TELL US HOW YOU GOT THE ivig APPROVED
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My insurance approved it with the diagnoses being: unspecified autoimmune disease, Sjögren’s Syndrome, and POTS and then explained to them why I needed it.
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