I don’t want to say anything further before I am sure, however I think I have figured out my mystery disease! I will know more after Tuesday.
I am on the final level of titration for the steroids. Thank goodness! I will write more about what they helped or didn’t help with sometime, but for now, I will just say they made me so incredibly tired. At this lowest dose, it isn’t quite so bad, but they also don’t help with most symptoms they were helping with. The level of fatigue I feel today is not a level I thought I would ever be grateful for, but I sure am! I got a bit overexcited and used all of my spoons by 3:00 PM (and I woke up at 11:30), but oh well.
I actually do not feel any negative emotions about currently being in pain, exhausted, dizzy, and unable to think. I don’t mind I had a fever for awhile. Why? Well, because I feel industrious. Alternating with rests, I visited with my sister for a bit, did my physical therapy, printed off some information, lightly picked up the house, and finished some cooking I started yesterday. It may not sound like much to you, but to me, that is a busy day. I am proud of myself and grateful. Now I am out of energy. If I’m not careful, I won’t have enough to eat and digest dinner or do my bedtime routine, so I plan to rest until bedtime.
On the steroids, I felt this horrible but all I had to show for it was having gotten out of bed, struggled through physical therapy, and fed myself. I think being on the lowest steroid dose combined with getting IV fluids yesterday both contributed to my Superwoman abilities today. Even if I am tired tomorrow from today, I will be alright with it. Feeling horrible is much easier to weather when you have something to show for your day aside from your continued existence!