Health Update · Mayo Clinic POTS Clinic experience

What’s new since I’ve been home…

The “Welcome to Mayo Clinic” sign, we took this picture on our way out of town — kind of backwards!

 

 

It is so nice to be home! The ride home made me very sick. By the time we got home, my heart was pounding so hard in my chest I couldn’t ignore it and my lymph nodes were swollen. Still, it was so nice to arrive at home and sleep in my own bed. On Sunday, I finally started to recover from the ride. It helped a lot that my parents came and helped me out around the apartment and Jake helped clean too.

The main purpose of staying the second week, was to try and figure out if something other than my autonomic nervous system could be causing the nausea and vomiting. My transit study was normal and the gastroenterologist could not figure out any reason for the nausea and vomiting. For this reason, it is being attributed to my autonomic nervous system and POTS. They hope that as my other symptoms get better, so will this symptom. In the meantime, I should keep eating small meals, not drink with meals, and hope for the best!

A lot of people have wanted to know more about my recovery plan. I have added a page titled “The Plan” which can be found at the top of the page. It has all the information about what I am going to be doing to feel better. Some people have also been asking me when I became sick. I became sick almost 5 years ago and the doctors finally figured out it is POTS this year. Most people had no idea I was sick because I worked very hard to hide it. Although I did seek out medical help and went to close to 20 doctors in just a few years, I didn’t want to accept how sick I was becoming. I kept thinking if I didn’t acknowledge being ill out loud, and powered through, one day I’d wake up and be healthy again. I overrode my body with amphetamines (Adderall), caffeine pills, and pain killers (Tramadol). If I hadn’t taken all of these medications (prescribed of course), there is no way I would have been able to graduate college or work the short amount of time that I did. It definitely wasn’t healthy to override my body like that, but I don’t exactly regret it either. I gained a ton of experience in my field in college and loved every minute of my job. Despite the rest of my life being wonderful, my health kept getting worse and worse. It was like my body was just screaming at me “STOP OVERRIDING ME WITH DRUGS” until it got to the point that no medication could override the symptoms. It was at this point, I finally accepted being ill and began telling everyone about it. So having a blog, telling the whole world about my illness, is a long way from where I was.

The best part of being home is getting to see Emma today. Hanging out with Jake and Emma is one of my favorite things in the world and always makes me smile. She has somewhat noticed my being sick and will ask “how ya feeling??” — it is adorable and so sweet. She is a huge motivation to work hard at following my treatment plan. I’d love to always be able to say “yes” when she asks me to play with her and I know someday, that will be the case! In the meantime, she is happy crawling into bed with me when I need to rest :-).

20120911-221527.jpg
Jake, Emma, and I hanging out at my parent’s house today. I was so happy to see her after two weeks and so was Jake!! She is going to be 3 in one week.

— Jackie

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Health Update · Mayo Clinic POTS Clinic experience

What’s new since I’ve been home…

The “Welcome to Mayo Clinic” sign, we took this picture on our way out of town — kind of backwards!

 

 

It is so nice to be home! The ride home made me very sick. By the time we got home, my heart was pounding so hard in my chest I couldn’t ignore it and my lymph nodes were swollen. Still, it was so nice to arrive at home and sleep in my own bed. On Sunday, I finally started to recover from the ride. It helped a lot that my parents came and helped me out around the apartment and Jake helped clean too.

The main purpose of staying the second week, was to try and figure out if something other than my autonomic nervous system could be causing the nausea and vomiting. My transit study was normal and the gastroenterologist could not figure out any reason for the nausea and vomiting. For this reason, it is being attributed to my autonomic nervous system and POTS. They hope that as my other symptoms get better, so will this symptom. In the meantime, I should keep eating small meals, not drink with meals, and hope for the best!

A lot of people have wanted to know more about my recovery plan. I have added a page titled “The Plan” which can be found at the top of the page. It has all the information about what I am going to be doing to feel better. Some people have also been asking me when I became sick. I became sick almost 5 years ago and the doctors finally figured out it is POTS this year. Most people had no idea I was sick because I worked very hard to hide it. Although I did seek out medical help and went to close to 20 doctors in just a few years, I didn’t want to accept how sick I was becoming. I kept thinking if I didn’t acknowledge being ill out loud, and powered through, one day I’d wake up and be healthy again. I overrode my body with amphetamines (Adderall), caffeine pills, and pain killers (Tramadol). If I hadn’t taken all of these medications (prescribed of course), there is no way I would have been able to graduate college or work the short amount of time that I did. It definitely wasn’t healthy to override my body like that, but I don’t exactly regret it either. I gained a ton of experience in my field in college and loved every minute of my job. Despite the rest of my life being wonderful, my health kept getting worse and worse. It was like my body was just screaming at me “STOP OVERRIDING ME WITH DRUGS” until it got to the point that no medication could override the symptoms. It was at this point, I finally accepted being ill and began telling everyone about it. So having a blog, telling the whole world about my illness, is a long way from where I was.

The best part of being home is getting to see Emma today. Hanging out with Jake and Emma is one of my favorite things in the world and always makes me smile. She has somewhat noticed my being sick and will ask “how ya feeling??” — it is adorable and so sweet. She is a huge motivation to work hard at following my treatment plan. I’d love to always be able to say “yes” when she asks me to play with her and I know someday, that will be the case! In the meantime, she is happy crawling into bed with me when I need to rest :-).

20120911-221527.jpg
Jake, Emma, and I hanging out at my parent’s house today. I was so happy to see her after two weeks and so was Jake!! She is going to be 3 in one week.

— Jackie

20140625-172947.jpg

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